See also Advance Care Planning, ReSPECT Forms, Advanced Decision to Refuse Treatment GP Gateway Page
CASTLE Website for Palliative Care Support
The palliative care website for Coventry and Warwickshire is http://www.c-a-s-t-l-e.org.uk/
For guidance on medication, advance care plans, individual care plans and using ReSPECT forms
Palliative Medications – see links right for comprehensive guidance and contact information for Coventry or Rugby
The British National Formulary (BNF) also has helpful advice on prescribing in palliative care, including symptom control and continuous subcutaneous infusions.
Caring for patients at the End of Life in the Community
Coventry Palliative Care Team Referral Pathway
Referral Criteria
All referrals will be triaged by a Clinical Nurse Specialist and prioritised
Priority will be given to those patients requiring an urgent assessment
These patients should have been assessed by a Health Care Professional within the previous 48hrs and meet one or both of the following criteria:
- Particularly severe symptoms not readily responding to current management
- A rapidly deteriorating condition requiring specialist palliative care input
Please include:
- Details of physical, psychological, social and spiritual specialist palliative care needs of the person and/or their carers, to facilitate triage in a timely manner
- Current / previous medications / treatments / interventions and response
Forms should be emailed to: spct@uhcw.nhs.uk
Contact: Community Specialist Palliative Care Services, Wayside House, Wilsons Lane, Coventry, CV6 6NY Tel: (024) 76237001
Availability of Medications – Palliative Care Community Pharmacy Scheme
Coventry SPCT has negotiated with 2 local pharmacies to carry extended stocks of EOLC drugs enabling all GP prescriptions for the drugs attached to be fulfilled.
This will operate for the duration of the pandemic only.
UPDATE – Palliative Care Community Pharmacy Scheme
Lloyds Pharmacy Kenpas Highway is no longer offering the Palliative Care Community Pharmacy scheme. This branch has been replaced by Lloyds Whitaker Avenue. Details of the pharmacies participating in the Palliative Care Community Pharmacy scheme for access to palliative care drugs are:
Lloyds Pharmacy 2 Stoney Stanton Road, CoCHC, Coventry, CV1 4FS Tel: 024 76226230
Mon-Sat 9am-8pm (closed 1-2pm for cleaning & disinfection)
Sunday 9am-6pm (closed 1-2pm for cleaning & disinfection)
Lloyds Pharmacy 2 Whitaker Avenue, Allesley, Coventry, CV5 9JE 024 76673494
Monday 10:30 – 18:00
Tues – Fri 09:30 – 18:00
Saturday 10:00 – 16:30
Sunday Closed
Resources
For further information see C-A-S-T-L-E Website
e-LfH Learning Resource on discussing unwelcome news
General Prescribing for the Care of the Dying Adult – click link here
e-ELCA COVID-19 learning path click link here
ReSPECT process click link here
Coventry and Warwickshire Palliative Care Drug Guidance
Click on image below to download full size version
Dieticians and Lymphoedema
WAYS TO BOOST FOOD INTAKE – click here for a leaflet giving first line advice to patients and their carers. Maybe print some copies to take on home visits?
SIP FEED GUIDANCE FOR PRIMARY CARE TEAMS, USING THE MUST SCORE – click here (page 1 for MUST score, page 2 for what to do next).
MacMillan contacts for patients
The MacMillan Support Line is free on 0808 808 00 00, open Mon-Fri 09:00-20:00. Textphone 0808 808 0121, or Text Relay, for people with hearing impairment. Interpreters are available for non-English speakers. For patients and carers, friends and families. The team can provide information about cancers, emotional support and welfare advice.
ReSPECT forms
- ReSPECT is a process that creates personalised recommendations for a person’s clinical care in a future emergency in which they are unable to make or express choices
- The plan is created through conversations between a person and their health professionals.
- The plan is recorded on a form and includes their personal priorities for care and agreed clinical recommendations about care and treatment that could help to achieve the outcome that they would want, that would not help, or that they would not want.
Click on image below or follow link right in referral forms for electronic ReSPECT form
Coventry Guidance 
Coventry Community Specialist Palliative Care Team
Newfield House, Kingfield Road, Foleshill, Coventry CV1 4NZ
Tel: 024 7623 7001
Fax: 024 7623 7047
Specialist Palliative Care Service is for people with an advanced progressive illness including cancer and other illnesses such as heart, lung and neurological conditions.
Provided alongside other active medical treatment in order to improve quality of life, focusing on what is important to the patient and their wishes.
The team is multidisciplinary with:
- Specialist palliative care nurses
- Palliative medicine consultant
- Palliative medicine registrar on rotation
- Physiotherapist
- Occupational therapist
- Clinical psychologist
- Palliative support healthcare assistants
- The Head of Service Debbie Nash.
Dr Hazel Coop is the Community Consultant in Palliative Medicine supporting the palliative care clinical nurse specialists by reviewing complex patients on home visits and in an outpatient clinic at Newfield House (Friday morning).
GPs can contact her for advice on 02476237001
There are three aspects to the service:
1. Clinical assessment (Mon-Fri 08:30-16:30) – The team assess the physical, psychological, social and spiritual needs of each patient and their families/carers. They offer home visits, outpatient appointments and telephone support. Expert advice can be provided on the management of pain and other troublesome symptoms. They can talk through concerns whether emotional, practical or spiritual, and give advice on other services available.
2. Care delivery (Seven days 08:00-22:00) – A team of palliative support carers deliver ‘hands on’ care for patients in the last 2-4 weeks of life.
3. Education and support – The team contribute to education and development in palliative care for key staff working in the community.
Please see right for the links to the Palliative referral form and pathway.
Contact details for Secondary Care – Coventry
UNIVERSITY HOSPITAL – the direct line for the hospital MacMillan nurses is 024 7697 5498, useful if you want to discuss a palliative patient who has been admitted to hospital.
Dr Alison Franks is a consultant in Palliative Medicine, with expertise in oncology. She also has an interest in cancers of unknown primary origin. If you are dealing with metastatic disease where the primary source is unkown, please contact her without delay. Dr Franks offers out-patient and in-patient services for symptom control and palliative chemo/radiotherapy, as long as the patient is not under another oncologist. GPs can contact her by bleep at UHCW, alternatively phone her secretary on 024 7696 5500. Email alison.franks@uhcw.nhs.uk
Serious complications of chemotherapy? Call one of the numbers below:
- Chemotherapy Nurse at UHCW (Mon-Fri 0900-1700) tel 024 7696 4000, bleep 1641
- Chemotherapy Suite at UHCW (Mon-Fri 0900-1800) tel 024 7696 7272
- Oncology Ward at UHCW (Ward 35) tel 024 7696 5528/5525, 24 hours.
Myton Hospice Advice Line
Tel: 01926 838889 or 838828
MYTON HOSPICE – see the hospice website for referral forms and other information http://www.mytonhospice.org/
Rugby & South Warwickshire Guidance
Rugby Community Specialist Palliative Care
The Community Specialist Palliative Care Team aims to provide the highest possible care for patients living with life limiting conditions.
Provides high levels of expert advice and support to those patients experiencing symptoms that are not manageable by the GP or District Nurse (symptoms can be physical, psychological or spiritual with a focus on improving quality of life).
Works closely with District Nurses and GP’s.
Availability:
Monday to Friday 9am to 5pm
On call Specialist Palliative Care CNS available at weekends and Bank Holidays 9am to 5pm.
Palliative Medicine Consultant: Dr J Poultney
Specialist Palliative Care – Clinical Nurse Specialists: Tracey Evans, Emma Charles, Karen Gussin and Marisa Warde
Senior Secretary Dawn Walker
Contact number: Tel 01926 600818
Referrals are sent via the Out of Hospital Care Collaborative iSPA: iSPA@swft.nhs.uk or swg-tr.warwickispa@nhs.net
Myton Hospice Advice Line
Tel: 01926 838889 or 838828
MYTON HOSPICE – see the hospice website for referral forms and other information http://www.mytonhospice.org/
We see consenting in-patients (& Dr Franks offers an out-patient service) with advanced progressive life-limiting diseases at University Hospitals. We are also very happy to give telephone advice as needed.
Contact details for Secondary Care – Rugby
Rugby Myton Hospice, Barby Road, Rugby, CV22 5PY. (At the entrance to St Cross Hospital, Rugby) Tel: 01788 550085
The day hospice runs Monday to Friday. Staff are on site from 8:30am until 4:30pm and patients stay between 10am and 3pm.
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